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Wed 7 May 2008 - 19:39 by Carole {Admin}

» Welcome to the M.E. Recovery Group Forum

Wed 7 May 2008 - 19:38 by Carole {Admin}

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We have 14 registered users
The newest registered user is starsailor

Our users have posted a total of 193 messages in 79 subjects

Welcome to the M.E. Recovery Group Discussion Forum.

Hi All... I would like to welcome you to what we hope will be a useful place for any M.E./CFS sufferer or their carer to talk, share, offer advice or even have a moan... Although the M.E. Recovery Group charity is based in the Scottish Borders, anyone is welcome to use this facility... All that we ask is that you treat everyone with respect and that you above all gain something from this new service...

On the left is the Navigation section which allows you quick links to the whole forum and the website. Also on the left, scroll the last 25 posts for quick viewing.

I look forward to "meeting" you...Kind regards... Carole.xxx

Contact Group

We are trying to work out a Contact Group which may be happening in the very near future.

How a Contact Group would/could work... members can contact each other by letter, telephone (at a time suitable for both persons) or email. Many people find email a good way to keep in touch as you can receive or send mail only when you feel like it.

Members would opt in to this and on joining will be given a list of members who also opt in, with a preferred method of contact. A brief profile of people's hobbies, family, job and level of M.E. disability etc. It is hoped that members could find someone whose interests matched their own and could then stay/keep in touch with each other or just certain members they feel they can talk or relate to. Members would hopefully feel less isolated, as can be the case with M.E. sufferers, especially in the Borders where we are all so spread out and far apart.

It would be explained to all new members that the Contact group was purely voluntary and that no-one should put pressure on any other member if they did not feel like talking/writing to each other at certain times or indeed if at all.

We are trying to get this up and running so will keep you updated as to when...

Please let us know if you have any interest in this.

NOTICEBOARD

http://www.borderscareandrepair.org.uk/

Borders Care & Repair
Ettrick Riverside, Selkirk,
Scotland. TD7 5EB.
Tel: 01750 724 895

Most people would like to stay in their own home for as long as possible but may need assistance in tackling the problems of an old or unsuitable house. Organising and financing building work can be a complex and often distressing experience .

Borders Care & Repair offers independent advice and assistance to help people repair, improve or adapt their home so that they can live in comfort and safety in their own community.

This free and confidential service is available to owner-occupiers and private tenants who are at least 60 years of age or anyone with a disability.

Borders Care & Repair is provided by a team based in the Selkirk office. They can visit you in your own home and provide any of the services listed below. Border Care and Repair will ensure that all work carried out is by reliable tradesmen from their approved list of contractors.

Home Improvements.

Handy Person Service.

Adaptation Service.

For more information see our website here or the Borders Care & Repair website here.

The ME Association wants to hear from as many people as possible about their experiences – good or bad – of coping with ME.

To do this they have produced a questionnaire which asks about treatments that work, treatments that don't work, and what people want when it comes to GP and hospital based services.

They also want to build up the biggest ever picture of what happens when people are given cognitive behaviour therapy or graded exercise therapy – two controversial forms of treatment that have been recommended in a guideline produced by NICE.

They can then go back to the Department of Health with a really comprehensive nationwide picture of this illness, along with recommendations on how diagnosis and services can be improved.

To take the survey go here

Please leave your thoughts on the survey on this forum and we will pass them on to the M.E. Association.

The survey will be open until 31 August 2008.

If you have ME, or care for someone with ME, please try and fill in the questionnaire. A paper copy will be available later for use by people with ME, and their carers, who do not use the web.

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GOVERNMENT FAILING MOST VULNERABLE

13 May 2008 on AfME website

As the government fights to prove that it understands the hardship faced by the most vulnerable people in society, a national survey published this week shows that many people who are severely affected by Myalgic Encephalomyelitis/ Encephalopathy (M.E.), have to struggle through the appeals system before they are awarded Disability Living Allowance (DLA).

The full article can be read Here